Monday, May 26, 2014

Give Hope

I remember when I first heard about St Jude Children's Research Hospital - I was in elementary school, and the Math-a-Thon for St Jude had been announced. You pledged to do a certain number of math problems, and family and friends would donate a certain amount of money for every math problem you completed (8-year-old me wants to know why they couldn't do a Write-a-Thon instead - I hate math). I remember watching the videos of children who were patients at St Jude and wanting to help them.

St Jude became a national project for ESA in 1972. St Jude is the largest treatment center for pediatric cancers, as well as one of the largest research facilities for childhood cancers.One of the great things about St Jude is that no child is ever turned away because of finances. If a child needs treatment for cancer, St Jude provides it for them.

In Fishers on Memorial Day, the Give Hope Ride benefiting St Jude takes place at Heritage Park. The ride originally started out of the home of John and Peg Wright in 2009, and has grown to almost 200 cyclists and over $12,000 raised for St Jude. It now takes place at Heritage Park in Fishers, instead of the Wrights' home.




This year, I joined the group of volunteers at the Give Hope Ride! I helped man the waiver table (very important when you've got a huge group of cyclists taking to the streets of Hamilton County) and helped cheer on the cyclists when they left Heritage Park and as they started to head back in.

What a good-looking group of volunteers!

This year had a record-setting group of cyclists leave from the park. There are four routes for the cyclists to take. The 9-mile Cruiser Ride leaves Heritage Park and goes through some subdivisions around Fishers - it's a good ride for families. There are then the Small, Medium, and Long Rides. The 24.1-mile Short Ride goes down by the Geist Reservoir and then heads back to the park. The 39.5-mile Medium Ride heads up into Noblesville with a stop at Forest Park. The last route - the 49-mile Long Ride - goes all the way up into Cicero. The exciting stop on that route was at Big Dog Smokehouse BBQ in Cicero - they opened up just for the Give Hope Riders to serve barbeque sliders! The Give Hope Ride also includes a kid's bike safety class.

Getting ready to take off!

Before they left Heritage Park, two local young adults who were St Jude kids spoke to the riders. One was a Northwestern University sophomore who was diagnosed with Hodgkin's Lymphoma as a kid. He took part in a research trial at St Jude that tested out a treatment that put him in remission with no side effects. That treatment is now the standard treatment for pediatric Hodgkin's Lymphoma. The second speaker, who particularly touched my heart, just graduated high school. She was diagnosed with an aggressive form of leukemia at just 23 months old, after showing no symptoms except for a rash. After finding out from her pediatrician that her red blood count was at 87,000 (normal range is around 10,000), her family rushed her to St Jude, and she started chemo the next day. If her family had ignored her symptoms, she would have only had 6 months to live. 

Away they go!

St Jude saves lives. It was so touching to hear those stories from St Jude kids, and to see so many people out supporting the hospital and the lives it saves. I'm looking forward to volunteering at next year's Give Hope Ride!

Monday, May 19, 2014

Blondes vs. Brunettes: One Team United Against Alzheimer's

"Two sides, one team.
Alzheimer's Disease does not choose sides.
Alzheimer's Disease does not keep score.
Alzheimer's Disease does not play fair.

On the football field, we may be Blondes and Brunettes, but together we are UNITED as ONE team in the fight against Alzheimer's. 

We play for our grandparents, parents, and ourselves. We play because unless we change the course of this disease, it will take a devastating toll on the families of future generations. Game day will come and go, but we will continue to fight Alzheimer's Disease until we win. 

Alzheimer's disproportionately affects women, both as people with the disease and as caregivers. As an event created and played by women, Blondes vs. Brunettes sends a message of solidarity: We plan to meet this disease with energy and attitude. We are the generation that can provide both the fuel and the spark in this fight. We are Blondes vs. Brunettes, and we are a team united to tackle Alzheimer's Disease."

I've written before about my grandparents' journey with Alzheimer's Disease. Alzheimer's is, hands-down, the most heartbreaking and devastating disease I have ever come up against. It is the worst feeling in the world to lose someone you love twice - once in mind, and then again in body. Alzheimer's can rob your loved one of everything about them - their memories, their personality, their voice - and their body will continue on as if oblivious to the fact that their mind is gone. Alzheimer's is the nation's 6th leading cause of death (although some research puts it just behind cancer and heart disease, because Alzheimer's is usually not listed as a cause of death - most Alzheimer's patients pass away from other complications, such as pneumonia or heart problems. 1 in 3 seniors does die with the disease, however.), and there is currently no cure and no good treatment option to slow it down. When you are diagnosed with Alzheimer's, you are diagnosed with a death sentence. There is no remission, there are no survivors. 

One of my biggest passions is fighting against Alzheimer's Disease. I'm involved with the Alzheimer's Association of Greater Indiana's young professionals group, Great Minds, and have been a part of the Walk to End Alzheimer's for four years now. This year, I joined Team Brunette of the Indianapolis Blondes vs. Brunettes (BvB) game. 


Bru Crew at our first practice on May 4!

BvB is an awesome event. On June 28, at Eli Lilly's Colonel Field, the Blondes and Brunettes will take the field in a powderpuff flag football game. The game raises awareness and funds for the Alzheimer's Association - each player has to raise $250 to play on game day. Last year, BvB raised over $30,000, and this year, we hope to raise even more. 

BvB recruits young professional women (and men, who often join as coaches and volunteers) to tackle Alzheimer's. It's also not just an Indy event - BvB is nation-wide, with teams across the US (it began in Washington, DC). Alzheimer's disproportionately affects women - both as patients and caregivers. Women in their 60s are twice as likely to develop Alzheimer's than breast cancer (Alzheimer's kills more people of both genders than breast and prostate cancer combined). Women are also more likely to be caregivers. BvB also helps raise awareness in general for younger generations - Alzheimer's is not just an "old person disease." When someone is diagnosed with Alzheimer's, it affects everyone around them, and early onset Alzheimer's Disease can be diagnosed in people as young as in their 30s and 40s. Everyone is at risk for Alzheimer's Disease. It does not choose sides, and it does not play fair. 

I play in memory of my Granny and my Grandpa, and I also play so that no one will ever have to lose their loved ones to Alzheimer's Disease. If you so choose, you can donate to me here (a $20 donation gets you a ticket to the game and a beer on game day!). We're on our way to tackling Alzheimer's for good. Go Bru Crew!

Sunday, May 18, 2014

Camp Riley, ESA, and Flowers

If you live in Indiana, you've probably heard of Riley Hospital for Children (also, I'm pretty sure that "Childrens" Hospital in The Fault in Our Stars is Riley, but that's just a guess). Riley does a lot of great things for children with chronic illness and injured children around the state of Indiana. They also have a summer camp program, Camp Riley, which is the state philanthropy for the Indiana chapters of Epsilon Sigma Alpha (ESA). Indiana ESA is actually celebrating 50 years of partnership with Camp Riley this year, and there are signs around Bradford Woods noting places that were built or donated from Epsilon Sigma Alpha.

The pavilion by the lake is a gift from ESA!

Camp Riley takes place at Bradford Woods, located about half an hour from the south side of Indianapolis. Patients from Riley Hospital are taken to Bradford Woods for a recreational therapy summer camp. There are three levels of Camp Riley - Riley 1 (staff : camper ratio of 1:1), Riley 2 (staff : camper ratio of 1:2), and Riley 3 (staff : camper ratio of 1:3). One of the great things about it is that all Riley kids can go, regardless of disability or financial situation. No camper is turned away.

This Saturday, myself and 4 other members of my ESA chapter, Eta Pi, went to Bradford Woods to help plant flowers and help get the site ready for the summer camp programs. Bradford Woods is 2500 acres of trails, lake, facilities, and recreational therapy areas. One of the things I thought was so awesome about it was that everything is universally accessible, so that any camper with a wheelchair can access every place that a camper without a wheelchair can access. Their amphitheater has ramps for each level so that campers with wheelchairs can access every level, and the seats fold up so that campers in wheelchairs can navigate through each row. The pool is even wheelchair-accessible - the shallow end is 3' deep and the deep end is 4', and the camp has special wheelchairs that are designed to go in the pool.

Eta Pi members on the stage of the amphitheater!

We spent our time planting flowers, weeding, and edging flower beds along the main entry sign, guard post, the various signs along the road leading into camp, and the decorative whiskey barrels around the property. The Bradford Woods employees were always stressing that every little bit of landscaping service helps - it's hard to keep up with 2500 acres!

Our hard work at the front entry sign!

It was so very cool to get to see one of the places that Indiana ESA chapters do so much for. I haven't been a part of ESA for very long, but I've already heard so much about Camp Riley. We were talking about going back sometime in the summer to see all the flowers we planted in bloom, as well as to see Camp Riley in action. I know I had a great time, and I loved getting to see this place I'd heard so much about and that does so much good for chronically ill and/or disabled kids. I really hope to go back soon. It's such a great place!

We found a Camp Riley sign!

Tuesday, May 13, 2014

Live Passionately

I have been a bad blogger. I haven't posted in a long time (it's a bad combination of being busy and lazy). Many apologies - I promise to do a better job keeping up with this now.

You may have noticed that I changed the name and look of this blog. No worries, I'll still post about how awesome my job is (because it is and I have fantastic coworkers - I love that they are as nerdy or more nerdy than I am. I had a great Game of Thrones geek-out during lunch today), but I'm also going to be focusing on the other passion in my life besides writing - volunteering and helping others.

I've known for most of my life that I love to write and I love to help others. I chose to make writing my career, and I have enjoyed pretty much every moment of it. I love getting to do what I love every day. I've also known for a long time that I want to help others - which is how I ended up with a degree in Professional Writing and a degree in Psychology.

Team Angel in the 2013 Anderson Walk to End Alzheimer's

When you graduate from college and start working full-time, suddenly, you have a lot of free time that you didn't have before (for a while, I felt like I was forgetting something I needed to do). Once I got settled in to my big kid lifestyle, I realized I was bored. I didn't mind having time to read for fun again, or binge-watching on Netflix, but even binge-watching gets old after a while. I wanted to be involved in something - I've been a part of some kind of organization for most of my life, from church choir to Anderson Area Youth Chorale to band to Professional Writing Club, and it was weird that I now didn't have that kind of organization or group to be with.

Volunteering at Forget Me Not Night at the Pacer's Game


I decided to continue following my passion of helping others. I got involved with the Alzheimer's Association of Greater Indiana, as a member of the Great Minds young professionals group, as a committee member for Blondes vs. Brunettes (an awesome flag football game that you should all go to on June 28 at Eli Lilly Colonel Field - oh, and go Bru Crew!), and as a committee member and volunteer for the Indianapolis Walk to End Alzheimer's and Team Captain of Team Angel in the Anderson Walk to End Alzheimer's. I've written about my Granny and Grandpa and their journeys with Alzheimer's before. It's a devastating, horrible, heartbreaking disease, and I love being involved with the Alzheimer's Association to help those that are affected by it and by being part of the movement to help end it.

Balloon Duty at the 2013 Indianapolis Walk to End Alzheimer's

I have also joined the Eta Pi chapter of Epsilon Sigma Alpha, a service organization. One of my good friends from high school is involved with ESA, and through her I pledged for the Eta Pi chapter last month. I haven't been a part of ESA for very long, but I already love it and the other members so much. ESA volunteers with Riley Hospital for Children, St. Jude, Easter Seals, and Eta Pi members work with causes that our members are passionate about as well.

2014 Race for the Cure with ESA

What I've learned in my first year of big kid post-grad life is to live passionately and love what you do. I'm blessed that I have a job and other organizations that I'm involved in where I can love what I do, whether I'm in the office or volunteering with the Alzheimer's Association or ESA. When action meets compassion, lives change, and I am so looking forward to being part of that change.

Tuesday, October 15, 2013

Forget Me Not: A Short Story of Alzheimer's

At the first Alzheimer's Association Great Minds meeting, I learned that Chicken Soup for the Soul is publishing a book about living with Alzheimer's and dementia. I knew right away I had to submit a story for it. Writing has long been my form of therapy, I've filled journals and felt so much better after putting pen to paper and getting whatever is in my heart and on my mind out.

There was a lot I wish I could have said, but I was limited to the 1200 word maximum. I plan on taking this short story and expanding it into a novel during National Novel Writing Month next month (aka NaNoWriMo, a challenge to write a 50,000-word novel during the month of November). I submitted this story tonight, and I should know by March whether or not it will be published in the Chicken Soup for the Soul collection.

***
"Forget Me Not" 

Nursing homes always seem to have an almost unnatural quiet about them. It must have something to do with the thick, plush carpet that hushes your footsteps, the quiet chatter of nurses, and the patients, clustered soundlessly in chairs in common rooms, or hidden behind the closed doors of their rooms.  Even a whisper seems too loud.

It is in this unnaturally quiet hallway that I wait, just outside Granny’s small apartment-style room, for my parents to finish up their goodbyes. The room was too crowded, so after hugging Granny goodbye, my face brushing her blue suit that she’s been wearing for the past several weeks since we can’t convince her to wear anything else, I lean against the wall, feet sinking into the plush carpet, and wait.

“And Angie, make sure to tell Courtney to come see me more often,” I hear Granny say.

My heart stops for a second and my stomach plummets. The moment I’ve been dreading, since Granny was diagnosed with Alzheimer’s several years before, has finally happened. She has forgotten that I was just there, that I had just spent an hour answering her repeated questions. The moments I spent with her weren’t enough for a memory to form. She had forgotten me.

I don’t hear Mom’s response. It’s all I can do to keep the tears from falling, to try and keep from sobbing as my heart breaks in two.

This is the beginning of the end, the long, slow decline into confusion and forgotten memories. While we could usually explain away the repeated questions, the mixing up of one grandchild with another, but it is impossible to deny a diagnosis of Alzheimer’s when Granny can’t remember spending an hour with me.

***

Dad punches in the code at the door to Monticello House. You have to put in a code to get in or out, so that patients can’t wander away. It is a depressingly necessary safety measure, but one that keeps my wandering Grandpa safely inside.

The lock clicks and Dad opens the door. I try to mentally prepare myself for this visit, clutching my senior pictures that I’ve brought for Grandpa’s room. Grandpa has gotten quieter in the last few visits, hardly talking to us at all and never initiating a conversation. He has started to become so different from the sociable, talkative, never-knew-a-stranger grandfather from my childhood that I have a hard time visiting with him. It hurts too much to see him quiet.

I follow Dad into Grandpa’s room. Grandpa is sitting in his chair, staring at, but not watching and comprehending, the evening news program that plays quietly on his TV. He looks up when we enter, but there isn’t much recognition in his eyes.

“Hi Grandpa,” I say, leaning down to hug him. He feels so small.

I hand him my framed senior pictures. “I brought some senior pictures for you!” I say, forcing some cheer into my voice.

Grandpa looks at the pictures and his brow furrows. He runs a finger across the frame, purses his lips. “That’s an awfully pretty girl. Do you know her?” he asks me.

I try to swallow the lump that has formed in my throat. “Yeah, Grandpa,” I say, trying to keep my voice from quivering and blinking quickly. If I blink fast enough, the tears that are quickly building won’t escape. “That’s me, Grandpa, Courtney.”

Grandpa looks at me, his brow still puckered in confusion. I can see how much he’s struggling, how hard he’s trying to place how he knows me. Every moment of his struggle twists my stomach and tugs at my heart.

“Your granddaughter,” I say, trying so hard to keep the hurt out of my voice.

“Oh,” Grandpa says, and looks back at the pictures. He can’t connect the dots. He knows my face, but he doesn’t remember me. All the memories of me, of spending the night at his and Grandma’s house, of trying to teach me how to cast with a Mickey Mouse fishing pole in the backyard, of trips to Gatlinburg and scrambling over rocks at the Chimney Tops picnic grounds, of him chasing after a younger me, vacuuming up the crumbs that spill from the cookies in my hands with his handheld Dirt Devil, of Christmases with presents wrapped with at least ten pieces of tape, are gone.

Dad reaches out and rubs my shoulder. “How about we put those pictures on your shelf?” he asks Grandpa, reaching over and taking the frame. He places it on the same shelf as the other family pictures, smiling faces that Grandpa looks at every day and most likely doesn’t recognize. He has already asked Dad once before who the lady with him in the picture is, pointing to my grandma, his wife of almost 52 years, that he no longer remembers.

“Doesn’t that look nice?” Dad asks.

Grandpa nods, his attention diverted back to the TV, which is now playing Wheel of Fortune. The multicolored wheel spins and blurs in the reflection on his glasses, reflecting the blurry haze of memories he can no longer navigate.

***

We’re crowded into Granny’s dim, small room. I’m sitting in between Mom, who is talking quietly to Aunt Becky, and my brother Josh, who is playing on his phone. My sister Brittany plays with Cali and Eli, our cousin Megan’s kids. Uncle Eddie, Aunt Linda, Dad, Uncle Bob, and Kari are grouped together on the other side of the room. We’re circled around Granny’s bed, biding our time as she spends what are surely her last hours sleeping.

Snow is falling lightly outside. It’s Christmas Eve. I check the time on my phone, as I’m supposed to meet Mitchell for Christmas dinner with his dad’s family. The minutes pass by, ticking closer to the time when I need to leave. I don’t want to go. I don’t know when the next time I’ll see my grandmother alive will be.

Granny has been sleeping through most of our visits with her. We keep a quiet vigil, on alert every time her breath catches, knowing that each time her chest falls, it may not rise again. When she does wake, she mumbles random phrases, or talks as if she was a child growing up in the Great Depression again. She does not recognize us. We are just trying to keep her comfortable and peaceful until the end.

I check my phone again. I’ve stayed as long as I can. I get up from my chair and say to Mom, “I have to go. Dinner at Mitchell’s mamaw’s house starts in half an hour.”

I walk over to the side of Granny’s bed and grasp her hand. I kiss her wrinkled cheek like I’ve done so many times before.

“Bye, Granny,” I whisper. “I love you.”


Her eyes open, and she searches my face. Then she squeezes my hand, and a flash of recognition I haven’t seen in years is in her eyes. She knows who I am, even if she can no longer pull my name from the recesses of her mind. Beneath the plaques and tangles, and the neurons that no longer fire the way they should, she knows me. She always has. 

Tuesday, September 24, 2013

The Great Debate: Liberal Arts vs. STEM

It just wasn't a fall semester on Purdue's campus without several weeks of Letters to the Editor in the Exponent claiming that Engineering was better than Liberal Arts, and that Liberal Arts students were destined to spend their entire careers asking "Do you want fries with that?". Liberal Arts students weren't immune either; there would be several letters from Liberal Arts students claiming that Engineers were uncultured and couldn't spell. Ah, the great debate.

Purdue's College of Engineering is the largest college at the school (which should surprise absolutely no one). The College of Liberal Arts, however, is the second largest college (which never fails to surprise lots of people). Purdue is attempting to stop the great debate and have more Liberal Arts/Engineering integration, which you can read about in this Exponent article (yes, I follow the Exponent on Twitter. Please don't remind me that I'm not on campus anymore and can't read a physical copy). The article mentions COMM 114, the introductory speech class that all Purdue students must take in order to graduate, and suggests that science students take some humanities courses, and that Liberal Arts students take some science classes.

What the Exponent article fails to mention, however, is that there's a great Liberal Arts program that already makes an effort to bridge the gap between Liberal Arts and the STEM majors. I'm sure you can guess where I'm going with this, because I never miss a moment to brag on the program that was the best possible fit for me and helped me find a job that I love, but the Professional Writing program already works with the STEM classes.

Professional Writing is, I believe, the Liberal Arts/STEM integration Purdue is looking for. Yes, we're trained in rhetoric, and there's a lot of reading, and we have to take so many English Lit classes to graduate, but PW students also learn the industry standard Adobe software, how to build websites using HTML, CSS, and content management systems like Drupal, and spend a lot of time actively thinking about how technology is changing the way writing works. As someone who went through the Technical Writing track, a lot of my classes focused on technology, how to document it, and how to work with the engineers and scientists who create what you're writing about. Not to mention, the PW program and its big sibling, the graduate Rhetoric and Composition program, help in the Writing Lab and maintain the OWL, one of the best-known online writing resources in the nation (the OWL is also turning 20 this year, guys! Hooray for the OWL!).

In my Technical Writing (ENGL 421) and Multimedia Writing (ENGL 419) classes, I was often outnumbered by engineering and science majors. In my Technical Writing class, I was the only Professional Writing student (even though it's a class run by the Professional Writing program). I found my job by going to the engineering career fair, Industrial Roundtable, not by going to a Liberal Arts fair (I knew the tech companies I wanted to work for wouldn't be at the Liberal Arts fair). I had discussions with my fellow PW Club officers about how PW students don't really have a career fair that's tailored to us - we're kind of the oddball of the English department. We didn't join PW because we wanted to write novels for a living, or teach English in schools. We went in to PW because we wanted to pursue Technical Writing, or get into the publishing industry, or become User Experience Designers.

PW students are also required to take a minor or a second major outside of the English department to make ourselves more marketable when we graduate. I minored in Biology and also have a Bachelors of Science degree in Psychology. I know people who minored in Chemistry, Botany, or double majored in Computer Graphics Technology. If that's not an integration of Liberal Arts and STEM, I don't know what is.

So, Purdue, good on you for wanting to bring Engineers and Liberal Arts students closer together, and to end the yearly argument over which discipline is better than the other (that got annoying really quickly, since, from the beginning, I knew I was going to work with engineers and scientists). Take a look though, at the Professional Writing program, and realize you already have a program that was already bridging the gap between Liberal Arts and STEM a while ago.


Tuesday, September 17, 2013

Going Back to Where it all Began: IR 2013

A year ago, a couple friends and I did what most Liberal Arts majors, and specifically what most Communication and English majors, don't do. We went to Industrial Roundtable.

If you've never heard of Industrial Roundtable, I'll give you a quick run down. It's often recognized as the largest student-run career fair in the nation, and upwards of 300 companies attend the 2-day fair, including extremely well-known ones, like Apple, Microsoft, Lilly, Caterpillar, and John Deere. Companies camp out on Memorial Mall looking for Purdue's best and brightest from the Colleges of Engineering, Science, and Technology.


Forgive the poor image quality - these are pictures from the steps of Stewart Center showing IR 2012. 

So what were two Professional Writing majors and one Comm major doing at IR? Looking for jobs of course! I knew from the beginning that I was interested in some form of science or technical writing - I minored in Biology because, when I was accepted to Purdue, my dream was to be a medical writer at Eli Lilly. I knew that going to a Liberal Arts fair was not where I was going to find the technology and medical companies I was wanting to work for. I knew that if companies were coming to IR looking for engineers, they also had a need for technical writers.

I had a great experience at IR 2012, and not just because I found my job there. Every recruiter I talked to seemed genuinely interested in me, asked me questions about my resume, and took my resume to be included with all the other resumes from engineers and scientists (although, as a tech writer, it shouldn't be surprising that I get along well with engineers and scientists). As terrifying and out-of-my-comfort-zone as it was, I would recommend any Purdue student who wants a job in the tech industry to go to IR. It's crazy, it's hectic, but it's a lot of fun, too.

This year, I get to go back to IR - but as a recruiter, not a candidate. I get to sit on the other side of the table this year and ask jittery, hopeful candidates about their resumes, their Purdue experience, and what they can bring to LHP Telematics. I'm so excited to get to go back, not just because it's a day I get to spend back on Purdue's campus (I miss that place. A lot.), but because I want to be able to help some other student get that email that says "we like you and we want to interview you for a job."

So, Purdue students, enjoy the craziness that is IR 2013, and stop by the LHP Telematics table tomorrow! And may the odds be ever if your favor.